Raising Awareness, Funds and Hope

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  What is SMA?

  SMA (Spinal Muscular Atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. Learn more ...

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  Fundraising Campaign Exceeds Expections

  To celebrate Kaiden's 2nd birthday on March 20, the Foundation chose to raise funds to purchase 3 Panthera Micro Mini Wheelchairs for children with SMA. Supporters came through in a big way, exceeding all expectations and raising more than enough money for 4 wheelchairs. Learn more ...

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  FDA approves Spinraza™ for SMA therapy!

  The FDA has announced the approval of the first-ever therapy for SMA. Spinraza™ (nusinersen) is not only a treatment, it also addresses the underlying genetic cause of SMA. The approval from the FDA for all SMA — pediatric and adult — is the broadest possible label, with no restrictions. Learn more ...

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  Who we are - The Fighting for Kaiden Team

  The Fighting for Kaiden Foundation team came together when SMA entered our lives. With Kaiden's diagnosis of SMA, the rally began, snowballed and resulted in a beautifully dedicated group determined to help not only Kaiden but others affected by this terrible disease. Learn more ...